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Hannah's Story

Hello! My name is Hannah and I'm 26-years-old. l work full time in the NHS and outside of work, I love keeping busy. I've had my feeding tube since I was 19 and have been on continuous feeds since 23. This means my feed comes with me everywhere I go, and whether I like it or not, I'm the girl with the backpack.   Up until about 8 months ago, I alternated between black and red square, bulky rucksacks. The rucksacks served me well, allowing me to go about my daily life whilst staying connected to my feed. However, I wasn’t that fond of them. The bags themselves were bulky and heavy. It wasn’t comfortable and hurt my shoulders. Almost...

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A food-free Christmas

This week we have our first guest post, from a dad who is getting used to having a son who is tube-fed. Here he tells us about the impact that has had on Christmas and the positive changes that they have made as a result. * * * * Christmas! What an amazing time of year! There are so many things that make us think "Christmas is here!", things such as mince pies, candles, mulled wine, Starbucks Christmas Coffees, pigs in blankets, Christmas trees, roast turkey, stockings, selection boxes, carols, Christmas pudding, nativity plays, chocolate advent calendars, Terry's chocolate orange. There's not much left once you've omitted all the edible elements is there? As a man who loves to eat and...

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Meet the great small businesses selling tube feeding and disability products

Since starting TubieeGo we have met a whole tribe of UK-based small businesses who are working hard to create high quality products for people with disabilities.   We thought it would be nice to introduce you to some of the wonderful people we have met.  They are all people who are, quite frankly, inspiring!  They have all found solutions for a frustrating problem and have then gone on to build businesses to bring this solution to other people too.  Their businesses have all been born out of a personal journey or connection with disability which means that they genuinely care about your situation.  And the icing on the cake is that they all produce high quality products and they do a little...

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Are you ready for winter?

Last year we learnt that winter can be an interesting time when you have additional medical needs to contend with.  Our winter period started in November and continued until April and consisted of chest infections, tummy bugs, PEG site infections and various hospital admissions.  It was a bit of a non-stop rollercoaster. This year we're approaching 'winter' with a touch of trepidation!  However, we're fattening up our little dude (literally) and I have experience and plans in place which will hopefully see us through.  Here are some of the things that we're doing, which I thought I would share in case they were helpful for anyone else feeling nervous about the months ahead. 1.  If you are a carer then...

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Bespoke Service Round-Up

One of our favourite aspects of TubieeGo is our Bespoke Service.  Giving people complete choice in what their feed bag looks like has been really rewarding and it's been fun to problem solve through issues and to provide bags that really suit an individual's needs and requirements. We thought that it would be fun to share some of our favourites with you and give some recommendations of bags which adapt easily..... The First One Our very first adaptation was possibly my favourite and also the most terrifying!  Despite having cut into many bags as we produced our Readymade Range, prepared Bespoke samples and also made bags for my son it was still hard to cut into a customer's bag for...

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