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Bespoke Service Round-Up

One of our favourite aspects of TubieeGo is our Bespoke Service.  Giving people complete choice in what their feed bag looks like has been really rewarding and it's been fun to problem solve through issues and to provide bags that really suit an individual's needs and requirements. We thought that it would be fun to share some of our favourites with you and give some recommendations of bags which adapt easily..... The First One Our very first adaptation was possibly my favourite and also the most terrifying!  Despite having cut into many bags as we produced our Readymade Range, prepared Bespoke samples and also made bags for my son it was still hard to cut into a customer's bag for...

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Nasogastric Tube Troubleshooting

This week we’re talking about all things ng.  We were fortunate enough to only be reliant on an ng tube for a matter of weeks, but in that short time I became very aware of the challenges that many of you are facing long-term.   Before tackling some practical challenges however, I’d like to briefly celebrate the simple ng tube - it is a literally a lifeline for many.  Really uncomfortable to insert and awkward to live with but a lifeline nonetheless. For us it made the difference between aspirating and not aspirating, lungs at risk and lungs that could recover.  Although it isn’t easy or pleasant, it has massive benefits, which are worth remembering when you can’t get a pH...

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Products that make tube-feeding easier - with a LOT of links!

Getting used to tube-feeding can be overwhelming.  It's very clinical, involves a lot of kit and it doesn't gel easily with 'normal life'.  As time passes however, you find things that work and problem solve your way through all manner of challenges.  One year in, here is my list of top products to make your life that little easier..... TUBE CARE AND ADAPTED CLOTHING Tubie Pads These have proven useful for protecting the skin around the peg and button site from leaking fluid, and also for preventing irritation from the tube moving around which has greatly decreased the amount of overgranulation we get.  I really like the ones sold by G Tube Pads UK.  They come with a cotton or...

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Tube-Feeding Holiday Tips: Flying - Planning Prompt Included

We are hoping to go abroad for our next holiday so I have been researching how to fly with a tube.  For those of you who, like us, haven’t flown before I thought I would share my research with you to save you the time and effort.  I've also created a planning sheet which you can find at the end of the post to download and print out.  Some of this info is from Facebook threads where others shared their own experiences - thank you everyone! Tip #1 - Ring your nutrition company Your nutrition company is a great place to start your prepping so give them a ring as soon as you’ve booked your flights.  Depending on the country...

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Tube-Feeding Holiday Tips: Planning - packing list included!

With the weather warming up many of us will be thinking about holidays!  Either you're organised and you already have something booked or you're like me and you're scouring airbnb and travel agents for late deals as you've left it pretty late!  As I start planning our own family holiday I've been thinking back to when we first went away with a tube and how daunting I found it.  For that reason I'm putting together a little blog series about tube-feeding on holiday with five tips on different aspects.  This post is about what to consider when you're planning your holiday.... Tip #1 - Relax and refresh! No doubt your life is pretty full-on if you are tube-feeding and dealing with...

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