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Nasogastric Tube Troubleshooting

This week we’re talking about all things ng.  We were fortunate enough to only be reliant on an ng tube for a matter of weeks, but in that short time I became very aware of the challenges that many of you are facing long-term.   Before tackling some practical challenges however, I’d like to briefly celebrate the simple ng tube - it is a literally a lifeline for many.  Really uncomfortable to insert and awkward to live with but a lifeline nonetheless. For us it made the difference between aspirating and not aspirating, lungs at risk and lungs that could recover.  Although it isn’t easy or pleasant, it has massive benefits, which are worth remembering when you can’t get a pH...

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Products that make tube-feeding easier - with a LOT of links!

Getting used to tube-feeding can be overwhelming.  It's very clinical, involves a lot of kit and it doesn't gel easily with 'normal life'.  As time passes however, you find things that work and problem solve your way through all manner of challenges.  One year in, here is my list of top products to make your life that little easier..... TUBE CARE AND ADAPTED CLOTHING Tubie Pads These have proven useful for protecting the skin around the peg and button site from leaking fluid, and also for preventing irritation from the tube moving around which has greatly decreased the amount of overgranulation we get.  I really like the ones sold by G Tube Pads UK.  They come with a cotton or...

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Tube-Feeding Holiday Tips: Flying - Planning Prompt Included

We are hoping to go abroad for our next holiday so I have been researching how to fly with a tube.  For those of you who, like us, haven’t flown before I thought I would share my research with you to save you the time and effort.  I've also created a planning sheet which you can find at the end of the post to download and print out.  Some of this info is from Facebook threads where others shared their own experiences - thank you everyone! Tip #1 - Ring your nutrition company Your nutrition company is a great place to start your prepping so give them a ring as soon as you’ve booked your flights.  Depending on the country...

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Tube-Feeding Holiday Tips: Planning - packing list included!

With the weather warming up many of us will be thinking about holidays!  Either you're organised and you already have something booked or you're like me and you're scouring airbnb and travel agents for late deals as you've left it pretty late!  As I start planning our own family holiday I've been thinking back to when we first went away with a tube and how daunting I found it.  For that reason I'm putting together a little blog series about tube-feeding on holiday with five tips on different aspects.  This post is about what to consider when you're planning your holiday.... Tip #1 - Relax and refresh! No doubt your life is pretty full-on if you are tube-feeding and dealing with...

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10 things I want you to know about having a child that is tube-fed

Here at TubieeGo we have personal experience of tube-feeding.  Jenni recently shared her own journey as a guest blog post for Mum on a Mission.....   As a mum who tube-feeds, here are the 10 things that I would love people to understand about having a child who is tube-fed. ONE The transition to tube-feeding is not a small feat.  I remember them calling it a ‘lifestyle change’ in the clinic room when they told me that my two-year-old son needed to become nil by mouth and tube-fed.  I nodded naively and commented that if it was what he needed then we’d just have to get on with it. I quickly learnt however that when your child becomes tube-fed you’re...

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