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Hello! My name is Hannah and I'm 26-years-old. l work full time in the NHS and outside of work, I love keeping busy. I've had my feeding tube since I was 19 and have been on continuous feeds since 23. This means my feed comes with me everywhere I go, and whether I like it or not, I'm the girl with the backpack.   Up until about 8 months ago, I alternated between black and red square, bulky rucksacks. The rucksacks served me well, allowing me to go about my daily life whilst staying connected to my feed. However, I...

This week we have our first guest post, from a dad who is getting used to having a son who is tube-fed. Here he tells us about the impact that has had on Christmas and the positive changes that they have made as a result. * * * * Christmas! What an amazing time of year! There are so many things that make us think "Christmas is here!", things such as mince pies, candles, mulled wine, Starbucks Christmas Coffees, pigs in blankets, Christmas trees, roast turkey, stockings, selection boxes, carols, Christmas pudding, nativity plays, chocolate advent calendars, Terry's chocolate orange. There's...

Since starting TubieeGo we have met a whole tribe of UK-based small businesses who are working hard to create high quality products for people with disabilities.   We thought it would be nice to introduce you to some of the wonderful people we have met.  They are all people who are, quite frankly, inspiring!  They have all found solutions for a frustrating problem and have then gone on to build businesses to bring this solution to other people too.  Their businesses have all been born out of a personal journey or connection with disability which means that they genuinely care about your...

Last year we learnt that winter can be an interesting time when you have additional medical needs to contend with.  Our winter period started in November and continued until April and consisted of chest infections, tummy bugs, PEG site infections and various hospital admissions.  It was a bit of a non-stop rollercoaster. This year we're approaching 'winter' with a touch of trepidation!  However, we're fattening up our little dude (literally) and I have experience and plans in place which will hopefully see us through.  Here are some of the things that we're doing, which I thought I would share in...

One of our favourite aspects of TubieeGo is our bag adaptation service (previously known as our bespoke service). Giving people complete choice in what their feed bag looks like has been really rewarding. Here are suggestions on what makes a great tube feeding bag for children or adults and some examples of the adaptations we've done.